Wednesday, October 10, 2018

Cognitive Diversity and Supportive Care

Two concepts every parent needs to take to heart.

As usual, I illustrate with a life instance of our own.

When we use the term Cognitive Diversity with Children, it means each child has a different way of processing information, responding to a stimuli and has a self created pace to it. They pick up social cues differently and decode it depending on their own cognitive capacities, parental acceptance, home environs, cultural inputs.
If we were to Accept each frequency, we would not have the need to diagnose or over diagnose a human being into a label.

Dyslexia
Dysgraphia
Dyscalculia
Attention Deficit Hyper Activity Disorder (invented recently)
Down Syndrome
Slow learning
Mental Retardation
Cerebral Palsy.
Speech, visual, physical impairments.

Yes these are some mental /physical health issues that are present in our lives.

These viewed from lenses of Cognitive Diversity give you a sense of power and purpose.

For even if you were to reach the diagnosis point, you will know another prognosis that says 'There is no medical cure. "

It has to be managed.

That brings us to creating a Supportive Care that aids the child to reach their maximum capability, whatever that is.

Acceptance is the key that unlocks many a doors.

Intelligent and sensitive management of the situation brings the parent child closer and bond deeper.

A child is given to you to mould and love.

Don't put them out in front of health staff and relatives to dissect.

So, Shahen in 2003, was given a verdict of ITP.

Restrictions of medications.
Bruises at slightest injury.
Fear of bleeding lurking
Continuous blood tests
Confining the kid from playing. For no contact sports for him.

We spend few anxious months before acceptance set in. Internet was not so wide spread in use with us then.

We met doctors, found out all we could and then accepted it.

Decided it would never be a limitation that will stop him from leading a full life.

We as parents co-ordinated. We would not go to the washroom without informing the other. We supervised his play from far. Some injuries took months to heal. We took it in our stride.

In school he could not attend Sports so we arranged with a heavy heart that he sit the hours in the library. Yes, his heart ached when he looked over from the library window the running kids. He compensated by lapping up all the books in library.

He got grievously injured in school and we were on homeschooling by then. We opted out.

Our trust in Universe deepened. He found gentle friends. He began playing cricket. He cycles now.

He is well-read.

Had we made rounds of doctors looking for the invisible, unattainable cure, we would have put in him a fear of life. His zest would have dimmed. We were barraged by relatives with vaidyas, ayurvedic and homeopathic cures, bhabhutis and babas and miracle drugs.

The doctor had explained: Every third day, immunity kills platelets, just in your child's case, more than needed.

Spiritual healings gave us the mental strength but the Supportive Care that was arranged made all the difference.

We talked to him about his special condition, yes Condition, never referred to it as a Disease or Inconvenience.

The precautions needed were taken when we went for outings but we also learned to overlook the bumps and bruises that happened.

Happens! Was our Mantra. We dealt with it and kept living. We brought opportunities of Public Speaking, Scripting, blogging, reading, psychological coaching which requires zero physical exertion yet encouraged when he went cycling for hours or played cricket or ran around in rains.

Every Condition is manageable. First accept and then actively get involved in creating a Supportive Environ for the child. The message to be conveyed is 'We love you and you are valuable.'

Avoid relatives who come in with fixes and restrictive guilt inducing cures.

Whether a Genetic Disorder or learning or behaviour, each can be managed. Learn all there is about the condition.

Accept Medicine has no cure.

Create Support within the family.

Father, Mothet Child and sibling, if any. Rest are outsiders if they do not form a team with you.

Do not medicate amphetamines to a so called ADHD or hyper kid and ruin them for life.

Do not forcibly try to fit a child meant to be safe and secure.

If they are different, you create a different Environ.

Fitting in is anyway outdated.

Sonnal Pardiwala 

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